A Widow Bit

When the care-giving is over:

Reflections on separation

 

This page is dedicated to the memory of John E. Andrist, who died at the age of 75 on Sept. 25, 2007. Nearly 14 years earlier, a brain stem stroke had left him totally paralyzed and unable to speak, a condition called "Locked-In Syndrome." During those years his primary caregiver and wife, Mary Koch, wrote a weekly newspaper column describing their life. Now she is offering a new series of weekly essays, reflecting on separation and loss.

If you would like to receive these weekly essays directly by e-mail, or if you would like to respond to Mary, please e-mail:

SEND AN E-MAIL TO MARY
(marykoch@marykoch.com)

RECENT ESSAYS

 I’ve appreciated the responses I’ve received in recent weeks as I’ve written about our final journey with our mother, Elsie Fagerlin. Elsie died May 25, a blessed release for her, a monumental but inevitable loss for us. MORE

TOTAL UP all the millions of dollars spent on Mother’s Day cards, flowers, candy, restaurant dinners and expensive gifts, and it would not equal the wealth of joy I’m experiencing, caring for my mother in her final weeks of life. MORE

MY FAMILY is gathered in Tacoma, some traveling from far parts of the country, to observe our final Mother’s Day with our matriarch, my mom.  When Mother was given the diagnosis – ovarian cancer – she opted for what is euphemistically called “comfort care” only. No chemo. No radiation. “Ninety-two is a good time to go,” she’s been telling us. MORE

AN E-MAIL from Jim, a longtime friend, reminds me that I omitted something important when I wrote last week about hospital experiences. Someone important, I should say. Jim said he planned to forward what I’d written to his wife Linda, a nurse, who might want to pass it on to others at her hospital. More

THE HEAVY GLASS doors open automatically with a “whoosh” that sweeps me inside. I’m Alice through the Looking Glass. Or am I Dorothy in Oz? What is it about hospitals that overpowers me, creates a heaviness in my soul, turns me into someone I don’t want to be?

I STOOD THERE on the riverbank, staring at the corpse, wondering what I should do next.       

IT SHOULD BE no surprise that you can log onto the Internet and find out when you’re going to die. I always thought only God knew that. But it figures; the Internet is the new god for many . . .

I've been busy; that's why

Irate over your IRA?

Should Auld Acquaintance'(lyrics) Be Forgot

Stories from the storm

Greeting the season

Numbering our years in trees

Things said and left unsaid

So who wants to fly first-class anyway?

And so we learn to accept God's seasons

When the smoke of battle clears, it's our decision

Something extraordinary
in all that is ordinary

This is more than puppy love

One year along the way, whatever way that is

Let sleeping dogs lie,
or they'll spring


Fantasy mixes
with remembrance

As if we had the choice

Tis as blessed to receive as it is to give

The last laugh's on me

Meals of Remembrance

From the Rearview Mirror
(A blog of Mary's roadtrip
to a South Dakota wedding)

The circle's unbroken
but smaller

Alone but not
always lonely

Whimsy may be
waiting in the wings


Just another day
and a celebration

Some circles that
will not be unbroken

Words are simple,
solutions not always


Celebrate the emptiness

A prayer for couples
who have it together


Applying those lessons learned

A definite question,
indefinitely answered


Letting go is the way
to conquer loss


Some things we may
 take with us


Once a caregiver, always . . . ?

After the dance is over

There's a physical part
to remembrance


Blowing it all
for a straight edge


Sorting it all out
for at least a year


A loving embrace
that never ends


There's a first time
for everything


An empty house means
there's always room
for a few more

All roads lead
to the same place

Like it or not,
labels still stick

Black Friday is profitable for this consumer, too

JOHN E. ANDRIST
OBITUARY

THE END
Final entry in the
'Journal of Healing'

ABOUT LOCKED-IN SYNDROME

ABOUT MARY KOCH

JOHN'S GRAND DAM ESCAPADE

PREVIOUS 'JOURNAL OF HEALING' COLUMNS
Six things learned after 13 years

We have the cure but not the will

The end of a period in more ways than one

Paws to consider the good life

Busy is as busy does

Do dollars add up to the best medical decision?

For Valentine's Day, skip the math

An economy of care may not be so caring

Resolution: To live up to my own obituary

SNAFU: Situation Normal -- All Fixed Up

The harvest is rich from seeds of the heart

Good patient care requires CYA antidote

Heavy Stuff: Confessions of a furniture mover

The trick is to treat with a clear conscience

The doctor's diagnosis was right on the mark

Traveling with wheels, but never alone

Knowing when to let go

What goes up gets ordered down

My life in dog years

Oh, the inconvenience of conveniences

Debate rages over end-of-life issues

Think about those boundaries in your head

The label is only part of who we are

To a dad who's gone but ever more present

Straight lines get you from point to point but not through life

Years of endurance punctuated by romance

The scientific method may not have a prayer

Just get over it? Not likely

The Reeve legacy: How tragedy empowers

Good news: Apologies with no regrets

Quick and easy, but for whom?

Sail on, o ship of state, but change course

No option, but there are still choices

I saw it on TV; it must be good

The Aging Brain: A Forest of Wisdom

If this is progress, why do I feel so backward?

Old age is all in how you look at it

When doctor's orders are tough to obey

When plans go awry, take heart

Plenty of turkeys for Thanksgiving this year

High medical bills? It's a matter of values

Health care a la Wal-Mart

No shortcuts to the right pathway

Do they make funny bone implants?

Roll a mile in their wheelchairs

Faith and familiarity get us through the long haul

ROOM FOR THE ROCKS
A Widow Bit – June 21, 2009
By Mary Koch

            A friend who is active in numerous civic organizations, has abruptly resigned some significant posts. Life has a way of telling you, he explained, when it’s time to make changes. That message may come in the form of illness, family disruptions, or in my case, two deaths – a husband and a mother – within 21 months of each other.

            I marveled, as I cared for my mother through her final weeks, at the peace I was experiencing. Of course there were sorrow and tears, the anticipation of loss. At the same time, there’s nothing like imminent death to heighten your appreciation of and appetite for life.  

            Having dinner with a friend one evening, I was silently pondering this unusual ease and calm in my soul.  Why don’t I feel this way when I’m at home, busy with all the things that fill my life, I wondered. As if reading my mind, my dinner mate told a story that I – and probably you – have heard before, about the professor who brings a quart jar full of rocks into his classroom.

            “Is the jar full?” he asks the class, and they agree it is. Then he pours pea gravel into the spaces between the rocks, and repeats the question. Now, the class agrees, the jar is certainly full. Then he pours in sand, which once again settles into unoccupied space. By now the class is suspicious, but they say, yes, the jar appears full. Finally, he fills the jar with water.

            I remembered the story, but I’d reached the wrong conclusion. The moral is not, my friend advised me, that there’s always room for more – that we can always pack more into our lives. The moral is, if we don’t put the rocks in the jar first, there won’t be space for them.

            When you have a seriously disabled husband and then a frail and dying mother, you don’t have to wonder, “What are the rocks in my jar?” Your life is full and meaningful. It’s not an easy life, but there is a peace in making someone you love feel comfortable and safe.

            After John died, fearing the space that had been filled by an enormous rock, I packed my quart jar to overflowing with gravel, sand and water. Perhaps that’s inevitable for some of us as we grieve – to fill that emptiness of  time and space. But water, sand and gravel cannot fill the emptiness of the soul. And so the jar appears full, but the substance – the content of our life – is lacking.

            At the risk of stretching this metaphor into something tiresome, the lesson I learned while caring for my mother is that it’s time for me to tip the jar, empty out at least some of the gravel, sand and water. I don’t know for sure what the new rock or rocks will be, but I do know I won’t have room for them unless there’s space in the jar.

 

A GLIMPSE OF HEAVEN
A Widow Bit – June 7, 2009
By Mary Koch

            After we solemnly watched the earth being shoveled over the urn in its grave, after we sang the hymns Mother had requested, after we listened to scripture she had chosen, after we embraced long-absent friends – wondering if this would be our final visit with some, after the family gathered for food and favorite stories, after all that, it was time to deal with the stuff.

            It’s the stuff of life, the abundance of things we believe we need. My parents never had a lot. Dad was a minister; Mom a writer and teacher. They not only couldn’t afford much, they had to move their household every once in a while.

            Even so, by the time Mother died, she’d crammed 92 years worth of goods and memorabilia into a two-room apartment. We filled my nephew’s pickup, my sister’s capacious car (twice!), and my van. And still, there was enough stuff left for a non-profit group to hold an estate sale

            We’d begun the process by offering family members an opportunity to take whatever they needed or wanted. There were no squabbles – how to divide the so-called “estate” has been a long-running family joke.

            I was moved when my nephew, who earned his master’s degree just before his grandmother’s funeral, accepted the velvet-lined hood that she’d worn for her master’s ceremony at age 60.  I was intrigued when her great-grandson, a rock musician with all the requisite piercings and grim attire, chose a delicate, fluted candy dish which Mother (for reasons known only unto her) had filled with pine cones. And I’ll never forget the look of delight and awe on the face of a great-granddaughter when I pulled a bright red kimono from the wardrobe and handed it to her.

            Her mother, my niece Sandra, agreed to take on the Herculean chore of archiving boxes and boxes of family photos dating back to her great-grandmother’s albums.

            “Be ruthless,” Mother’s best friend Jean advised my sister-in-law Ericka as Ericka puzzled over what clothes to donate for the sale and what to toss.

            Ruthless was precisely how I felt as I sorted through Mother’s papers, discarding certificates and plaques attesting to her many achievements and awards, even a paper she’d saved from her student days, bearing an “A” grade and a handwritten note from the professor: “Rarely do I have an opportunity to read papers of this quality …”

            I kept her journals, boxes of them dating from 1931, which will join boxes of my husband’s journals and my own in my well-filled basement.

            Back home last night, I sat on the patio, sad but not depressed, alone but not lonely. A full moon danced a do-se-do with a line-up of dark clouds. When the clouds were in front, you could see a mysterious light leaking out around their edges – like walking at night past a lighted house with its curtains drawn. You know there are things going on inside.

            That’s all I know for sure about heaven – there’s something going on behind those dark clouds, where the light radiates.