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LESSONS IN ANGER MANAGEMENT
May 10, 2009
By Mary Koch
My family is gathered in Tacoma,
some traveling from far parts of the country, to observe our final
Mother’s Day with our matriarch, my mom.
When Mother was given the diagnosis
– ovarian cancer – she opted for what is euphemistically called “comfort
care” only. No chemo. No radiation.
“Ninety-two is a good time to go,”
she’s been telling us. She’s outlived her siblings, her husband, and
many of her friends. When asked, she told a hospice social worker that
the thing most important to her now is her faith.
The answer apparently wasn’t enough
for the social worker, who later asked me, “Besides her faith,
what does she use to get through difficult times?”
“ ‘Besides her faith!?’ ” I
echoed, dumfounded. “What else does she need?”
As the cancer progressed, Mom told
me over and over: “This isn’t bad. I thought it would be worse.”
Then it got worse. Pain management
is not a precise science. Mother’s medications are adjusted daily in
hopes of finding the magic formula to alleviate the pain without turning
her into a zombie.
I’m angry with God about the pain.
Seems to me, she’d had more than her share already: three births and a
miscarriage, polio, a needless hysterectomy, two inoperable aneurisms
that gave her permanent double vision, and finally, last year, a broken
neck. That she survived such a thing at age 91 was nothing short of a
miracle.
The aneurisms were discovered in her
carotid artery a few years back, and since then we’ve been anticipating
– with dread – the scenario lined out by the neurosurgeon: There’d be an
explosion in her brain, “the worst headache of your life,” and she’d
die. I’d prefer she – not to mention myself – would die while sleeping
peacefully in her own bed. Even so, a sudden, fatal stroke would be
preferable to cancer.
Just as with the neurosurgeon, we
asked the oncologist what to expect. He explained that Mom would grow
gradually weaker over the “months” to come and eventually die.
“You may not even have any pain,”
the doctor said. I wrote that in my notes, word for word, as if it were
some kind of money-back guarantee. Within a few short weeks, I received
a phone message: Don’t wait until Mother’s Day to return.
Mother is holding on for Mother’s
Day, but not without suffering.
I can’t remember ever being this
angry with God. I was furious when my husband suffered a stroke and
paralysis, but I deflected that anger, targeting the health care system,
medical insurance and whoever else had the bad luck to cross my path.
Venting my anger that way was like throwing a ball at a brick wall; it
just comes right back at you, faster and harder.
It is far more healing to be angry
with the divine. God absorbs my rage, and instead of returning it with
cosmic force, embraces me with comfort and love.
I know that’s how it works, because
it’s what my mother taught me.
DID YOU HEAR THE ONE ABOUT …
May 17, 2009
By Mary Koch
It strikes me funny, how often we
find a reason to laugh as death approaches. During these final weeks of
my mother’s life, each day unfolds with as much laughter as tears.
Sometimes more.
Now that medications have finally
got Mother’s pain more or less under control, there’s time and space for
humor. This journey toward death makes us more keenly alert to life.
That irony alone is enough to amuse heaven’s angels. With a good laugh
comes deeper breathing; the body and heart are energized and
strengthened for what is to come.
Mother joins our laughter. Her
speech is a mere whisper, the words slurred and often incomprehensible.
Nonetheless, she summons adequate clarity to utter an occasional
wisecrack that fits the moment: “Well, FI-nally!” or “I doubt THAT!” or
– from this lifelong lady of refinement – an extended, rumbling belch.
The welcome burp eases the pressure of cancerous fluids in her abdomen.
Ironic that it tends to occur just after I’ve said something (in my
opinion alone) profound.
We laugh at the inevitable screw-ups
that happen when we’re trying to do everything so perfectly in this
hospice-like environment. It’s like farting in church; we are human,
after all. There’s the laughter that comes with 92 years worth
of stories. The stories don’t need retelling; we all know them, but we
grab at any opportunity to say, “That’s like the time …” and we’re off.
On the last day of my brother’s
visit, we found ourselves in a ridiculous, Keystone Cops-style paper
chase, driving cross-town town through the rain, double-dotting the i’s
and triple-crossing the t’s in the arrangements Mother had already
astutely made. It was a welcome distraction from thinking about the
difficult, final goodbye he and his wife would be saying in a few hours
before returning to North Carolina.
I arrived at Mother’s a little over
a week ago, planning to stay a week. As soon as I got here, I knew I
wasn’t going home again until her journey is complete.
There is not adequate staff in
Mother’s assisted living facility to provide the 24/7 care she requires,
so we’re hiring caregivers from an agency. For the most part that’s gone
well, but for the morning shift, the agency sent someone who had none of
the skills – transferring, positioning, bathing and feeding – that
Mother required. And I, a veteran caregiver, did. Worse, that particular
caregiver cooed baby-talk to my mother, who has a master’s degree in
education.
I’d like to say that I took her
place in the caregiving rotation because I recognized my need to enrich
my relationship with Mother by tending to her in her final days. I’d
like to say that, but I can’t. What I was really thinking was, “We’re
paying twenty bucks an hour for THIS!?”
God has a sneaky way of appealing to
our so-called practical nature. It’s a ruse, a gentle nudge to get us
doing the real work of the soul. And I have to laugh.
READERS'
RESPONSES:
As I read
your most recent "Widow Bit" I recalled the humorous times I spent
with my mom caring for my dad the last two weeks of his life. My
dad always had a great sense of humor and even as he became more
incapacitated, he would crack a joke about not being able to get
from point A to point B. My thoughts and prayers are with you and
your mom, M.S.I'm so glad
you have been able to be with your mother. I was with mine, too.
One of the best parts of taking care of my mother and husband was
the laughter. Without it I'm not sure I could have done it. But, I
think God gave us laughter for some very good reasons..... D.K.
As my mother, a world traveler/teacher lay
in her care home bed with little flesh or time left, I remembered
the pictures of her playing the uke and dressing flapper style with
more than adequate bosoms flattened. As she drifted back into life,
I asked her what was the most important thing she had ever done in
her wonderful like. "You," she whispered. I try to be lay
person in church on mom's day to tell that story. Few dry eyes. J.M.
I relived my experience with the death of
my father some years ago from pancreatic cancer when I read your
musings about your family and mother - so true, the whole thing.
J.A.
My mom died just one year ago. She was 96
and, like your mom, had lived a full and happy life. She
suffered a stroke some months before her death and was unable to
speak, but was quite her old willful self as she made it clear
that she would be refusing all food and drink during the final
weeks - taking charge of her situation to the last. She was
so ready to relinquish a body that just didn't serve her needs
anymore. A person of great faith, her passing was very peaceful.
As I sat with her those final days, I kept a journal...thinking
to bring some insight and comfort to my own kids when my turn
came to depart. Oddly enough, as I reread these notes now, they
bring me an unexpected measure of peace and
reassurance. All will be well. J.M.
One friend wrote about a family
member who was in his final weeks of life, suffering from
cancer. When his niece and her boyfriend visited him, the uncle
asked that they take him outside to get a smoke. They went
through extensive rigmarole to get him into a wheelchair with
all this tubes and bags. Oblivious to the difficulty of merely
getting him outside, the uncle turned to his niece and said,
"You guys don't have any pot do you?" Without missing a beat,
the niece told her uncle, "No, we don't, but if you can find a
dealer between here and outside we'll fix that for you." The
uncle is gone now, but the family is still laughing about the
hospital visit.
Somehow it always seems to me that
it is the ones who care the most who find the humor - in
everything , just as always. R.H.
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