A Widow Bit

When the care-giving is over:

Reflections on separation

 

This page is dedicated to the memory of John E. Andrist, who died at the age of 75 on Sept. 25, 2007. Nearly 14 years earlier, a brain stem stroke had left him totally paralyzed and unable to speak, a condition called "Locked-In Syndrome." During those years his primary caregiver and wife, Mary Koch, wrote a weekly newspaper column describing their life. Now she is offering a new series of weekly essays, reflecting on separation and loss.

If you would like to receive these weekly essays directly by e-mail, or if you would like to respond to Mary, please e-mail:

SEND AN E-MAIL TO MARY
(marykoch@marykoch.com)

RECENT ESSAYS
The last laugh's on me

Meals of Remembrance

From the Rearview Mirror
(A blog of Mary's roadtrip
to a South Dakota wedding)

The circle's unbroken
but smaller

Alone but not
always lonely

Whimsy may be
waiting in the wings


Just another day
and a celebration

Some circles that
will not be unbroken

Words are simple,
solutions not always


Celebrate the emptiness

A prayer for couples
who have it together


Applying those lessons learned

A definite question,
indefinitely answered


Letting go is the way
to conquer loss


Some things we may
 take with us


Once a caregiver, always . . . ?

After the dance is over

There's a physical part
to remembrance


Blowing it all
for a straight edge


Sorting it all out
for at least a year


A loving embrace
that never ends


There's a first time
for everything


An empty house means
there's always room
for a few more

All roads lead
to the same place

Like it or not,
labels still stick

Black Friday is profitable for this consumer, too

JOHN E. ANDRIST
OBITUARY

THE END
Final entry in the
'Journal of Healing'

ABOUT LOCKED-IN SYNDROME

ABOUT MARY KOCH

JOHN'S GRAND DAM ESCAPADE

PREVIOUS 'JOURNAL OF HEALING' COLUMNS
Six things learned after 13 years

We have the cure but not the will

The end of a period in more ways than one

Paws to consider the good life

Busy is as busy does

Do dollars add up to the best medical decision?

For Valentine's Day, skip the math

An economy of care may not be so caring

Resolution: To live up to my own obituary

SNAFU: Situation Normal -- All Fixed Up

The harvest is rich from seeds of the heart

Good patient care requires CYA antidote

Heavy Stuff: Confessions of a furniture mover

The trick is to treat with a clear conscience

The doctor's diagnosis was right on the mark

Traveling with wheels, but never alone

Knowing when to let go

What goes up gets ordered down

My life in dog years

Oh, the inconvenience of conveniences

Debate rages over end-of-life issues

Think about those boundaries in your head

The label is only part of who we are

To a dad who's gone but ever more present

Straight lines get you from point to point but not through life

Years of endurance punctuated by romance

The scientific method may not have a prayer

Just get over it? Not likely

The Reeve legacy: How tragedy empowers

Good news: Apologies with no regrets

Quick and easy, but for whom?

Sail on, o ship of state, but change course

No option, but there are still choices

I saw it on TV; it must be good

The Aging Brain: A Forest of Wisdom

If this is progress, why do I feel so backward?

Old age is all in how you look at it

When doctor's orders are tough to obey

When plans go awry, take heart

Plenty of turkeys for Thanksgiving this year

High medical bills? It's a matter of values

Health care a la Wal-Mart

No shortcuts to the right pathway

Do they make funny bone implants?

Roll a mile in their wheelchairs

Faith and familiarity get us through the long haul

TIS AS BLESSED TO RECEIVE
AS IT IS TO GIVE

A Widow Bit – July 20, 2008

By Mary Koch

            It’s a gas guzzler. Fifteen years old with 114-some-thousand miles on the odometer, it’s got rust spots outside and frayed upholstery inside. But the engine never hesitates and, most important, the hydraulic wheelchair lift on John’s old van still works – with occasional tweaking.          
          
           I couldn’t help feeling good, really good, as I watched it backing slowly, cautiously out of my driveway the other evening.

            No, I haven’t sold the van. I can’t. It was a stunning gift all those years ago from John’s many friends in the newspaper industry. In terms of mobility and freedom, he cherished it second only to the battery-powered wheelchair that he could, within limits, drive himself.

            When the shiny new van arrived in our driveway in June of 1994, my instant reaction was love-hate. I was overwhelmed, even a little embarrassed, by the generosity of the gift, which was so big, with gaudy pin stripes and, most of all, shouted “DISABLED!”

            I suspect that’s the way people new to a disability, whether their own or a loved one’s, react to the strange equipment that suddenly crowds their home. Wheelchairs, hospital beds, commodes, Hoyer lifts . . . you resent them because of what they symbolize. Over time, resentment fades and gratitude grows for the way this stuff makes everyday life possible, even enjoyable.

            Ever since John died, I’ve been parceling out equipment to those who can use it, and I still have some to go. I tried to give the van away, but it came back home like a wayward family pet. I thought about selling it and donating the money, but then one thing happened after another. For winter, it was the only vehicle I owned with studded tires; when my mother fell and broke her neck, it was the simplest way to transport her to medical appointments; I wanted to drive to South Dakota, and the van would allow me to camp along the way.

            I’m so emotionally attached to that rolling heap of metal by now, I can’t imagine letting go of it. Except on occasion. A few weeks ago, a friend who is temporarily in a wheelchair called when transfers in and out of her passenger car weren’t going well. “You can have the van as long as you need it,” I assured her.

            Then another family called. It seems their wheelchair van is more disabled than their wheelchair user, and repairs are going to take a while. So John’s van will go back and forth between these two families until things settle down for them. It’s fun for me to be the back-up, the Plan B, for friends in wheelchairs.

            Fun because it was difficult, all those years ago, to accept the generosity of others. No one wants to be a “charity case.” But I learned the true meaning of charity; that it is simply divine love. Sometimes it is better to receive than to give. My reward for receiving and accepting is that now, I’m privileged to give.